GAINESVILLE - Navigating a new cancer diagnosis can mean walking through a scary new world, not only for patients but also for their families and caregivers. To help ease this complex and overwhelming transition, UF/IFAS Extension and UF Health Cancer Center experts have launched a new, free web-based curriculum, Taking Control of Your Cancer Diagnosis, designed to provide reliable, evidence-based information to those newly diagnosed with cancer about what to expect.
Developed by experts in social sciences and cancer treatment, the curriculum through UF Extension Online features 14 self-paced modules that address a wide range of concerns commonly faced during the early stages of a cancer journey. Topics include financial planning, managing stress and avoiding predatory practices, among others. Each module is presented by a subject matter expert and is meant to be used when you need it, not in any particular order.
“I think first and foremost, I want it to be a resource that someone can go to and know that this has been developed by experts,” said Melissa Vilaro, a UF/IFAS assistant professor of family, youth and community sciences and a member of the UF Health Cancer Center. “This is a place where people can come to find information that is evidence-based and accurate during one of the most stressful times of their lives.”
Ultimately, the goal is to provide a supportive, evolving resource that empowers individuals to take control of their diagnosis with confidence, she said.
The platform also recognizes the vital role of friends and family members, who often seek guidance on how to support their loved ones. Rather than turning to the internet at large, which can be full of misinformation, Vilaro said she hopes people can use this curriculum as a safe and trustworthy space to find clarity when they need it most.
Since the platform was just recently launched, Vilaro said she aims for it to grow as patients and their support systems go through the course since they can suggest topics that they’d like to see added and provide feedback on which topics were the most helpful.
“The hope is that, given that it’s a web-based platform, we’ll learn about things that aren’t there that people want added,” Vilaro said. “We’ll have the ability to adapt and refine this as we go.”
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